Lymphatic Education & Research Network (LE&RN) announced
today the award of a $200,000 grant as part of the New York State
2014-2015 budget. Assemblymember Linda Rosenthal and Senator Martin
Golden were lead sponsors. Funds will be used to support the development
of LE&RN's National Lymphatic Disease Patient Registry and Tissue Bank,
housed at the Feinstein Institute at North Shore LIJ Health System.
"Despite the fact that lymphedema and other lymphatic diseases affect an
estimated 10 million Americans, many of whom are cancer survivors, this
debilitating disease does not receive the attention it warrants, either
in terms of public awareness or funding," said Assemblymember Linda B.
Rosenthal (D/WF-Manhattan). "This lack of attention hurts those with
lymphatic disease, many of whom already feel isolated by the disease,
and adds insult to very real suffering. It is critical that we here in
New York do everything possible to raise awareness about the disease. I
was so pleased to secure, in conjunction with my colleague, Senator
Martin Golden, $200,000 in funding in the New York State budget to
support LE&RN's critically important and life-changing work."
The National Lymphatic Disease Patient Registry and Tissue Bank strives
to continually build upon its population of patients with associated
biological materials (blood and tissue samples), that serve as a source
for clinical and laboratory studies of lymphatic diseases. The database
is confidential, containing information about individuals who carry the
diagnosis of a lymphatic disease or lymphedema, allowing health care
professionals to work towards accurately identifying, categorizing,
treating, and preventing lymphatic diseases. The database is constantly
expanding, and each additional member within the network progresses the
laboratory studies closer toward meeting these goals.
In a meeting today where the funding was confirmed, LE&RN's Executive
Director, William Repicci, thanked Assemblymember Rosenthal and Senator
Golden, along with their Assembly and Senate colleagues who championed
the cause of lymphatic disease and lymphedema. Mr. Repicci said, "the
impact of New York State's commitment will reverberate around the
country and undoubtedly lead to the finding of treatments and cures.
This represents a significant milestone for both LE&RN, and the patients
we are committed to help."
Founded in 1998, the Lymphatic Education & Research Network (formerly
LRF) is a 501(c)(3) not-for profit organization whose mission is to
fight lymphatic disease and lymphedema through education, research and
advocacy. LE&RN provides valuable education resources for the millions
of people who suffer from lymphedema and lymphatic disease. LE&RN
fosters and supports research that can deepen the medical community's
understanding of the lymphatic system. For more information about
lymphatic disease or the Lymphatic Education & Research Network, please
and join us on Twitter,
or call (516) 625-9675.
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