Rare New Jersey:
New Jersey State Assemblyman Herb Conaway (D-7), Chair of
the Health and Senior Services Committee of the New Jersey
Legislative Assembly and Assemblyman of the 7th
district of New Jersey. Dr. Conaway has been a leading health care
advocate in New Jersey focusing on increasing access to excellent
care while keeping costs down, and tackling some of the most
common health issues citizens of New Jersey face like diabetes.
Eight Patient and Caregiver Speakers. From diagnosis to the
search for treatments and specialists, from newborn screening to
affordability of care, rare disease patients face myriad obstacles
in their quest for good health care and access to school, work,
and housing. The brief stories presented will exemplify the
community's challenges and triumphs in different phases of the
Debbie Hart, President and CEO of BioNJ, the state's trade
association for biotech companies and affiliated organizations.
NORD Representative: the leading umbrella organization
providing advocacy, education, research and patient/family
services for the rare disease community for 30 years.
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